Adults with Autism
(Note: some service providers listed here provide services to young adults with autism)
Ability First: Central Utah Center for Independent Living abilityfirstutah.org 801-373-5044 Provo, UT Helps people with cognitive or physical disabilities live independently. Access Utah Network accessut.org 801-533-4636 or 1-800-333-8824 firstname.lastname@example.org Access Utah Network is Utah’s prime source for information and referral for individuals with disabilities and their caregivers since 1990. Our operators can provide you with the information you need to find accessible housing, assistive technology and financial and social supports needed to live independently with a disability. Call us or explore our web site today to see how Access Utah Network can help you become more independent. Alpine House Katie: 801-373-9042 Provo, UT Transitional home that helps adults with cognitive disabilities. The home helps them learn skills to effectively participate in the community.
Autism After 16
Autism After 16 is dedicated to providing information and analysis of adult autism issues, with the emphasis on analysis. Anyone can Google “autism + adults” and discover a vast array of programs, documents, and products. Our intention here is to try to help adults with ASD and their families make sense of what’s out there. Our big focus out of the gate will be Transition issues, since so many of you are struggling with Transition right now.
Autistic Self Advocacy Network (ASAN) www.autisticadvocacy.org www.navigatingcollege.org email@example.com PO Box 66122 Washington, DC 20035 Run by and for Autistic people, ASAN was created to provide support and services to individuals on the autism spectrum while working to educate communities and improve public perceptions of autism. The handbook we’ve produced, Navigating College, and its corresponding website, www.navigatingcollege.org, is a first-of-its-kind resource written by autistic adults for autistic college students exploring the various aspects of the higher education experience. Best Buddies www.bestbuddiesutah.org Matches volunteers with individuals from the community who have developmental disabilities. Volunteers are matched in a one-to-one friendship and serve as a mentor friend. Volunteers are asked to see their buddy twice a month and make a phone contact at least once a week for an academic year. In addition, buddy pairs will participate in chapter activities and chapter meetings six to seven times a year. Big MAK’S (Mom’s of Autistic Kids) utahmaks.blogspot.com “More Support Than A 44DD” Big MAK’s meet every 2nd Monday of each month from 6-8 p.m. at Bouncin Off the Walls 398 West 9400 South Sandy, UT 84070 There are also several other activities throughout the year, especially during the summer. BYU Center for Service & Learning centerforservice.byu.edu firstname.lastname@example.org… 801-422-8686; (801) 422-1277 Families can request help from a BYU volunteer. The ad will be posted in the BYU Center for Service & Learning Center and online.
Canines with a Cause
The mission of “Canines With a Cause” is to rescue shelter dogs and train them to work with people who need a companion, therapy or service dog. Although we know all dogs are wonderful, some of them just don’t have what it takes nor do they want to work, they prefer being with person or family and just can’t leave kitties, other dogs or distractions alone. They are all special in our eyes and have basic training.
Central Utah Enterprises
801-375-0414 ext: 14
A program for individuals with disabilities to prepare them to work on their own or in a group home.
Child Care Connection
Child Development Clinic, Children with Special Health Care Needs
Utah Department of Health, University of Utah campus, 44 North Medical Drive, Salt Lake City, Utah 801-584-8510
Autism evaluations and treatment for ages 0-5 years. CSHCN provides and promotes family-centered, coordinated care and facilitates the development of community-based systems for these children and their famlies.
Children with Special Health Care Needs
44 North Medical Drive
P.O. Box 144610
Salt Lake City, UT 84114-4610
(801) 584-8239; (800) 829-8200
Columbus Community Center
They provide occupational skill training, vocational training, residential services, and critical living skills training.
Coordinator for Transition Services
Susan Loving, Specialist in Transition
Utah State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
Councils on Developmental Disabilities
Bryon Murray, Executive Director
Utah Developmental Disabilities Council
Salt Lake City, UT 84101
CTA Community Supports (Community Treatment Alternatives)
A non-profit organization that has provided services to adults and children with autism spectrum disorder since 1985. CTA developed the ASAP model to fill the gap between these two services with the primary objective of keeping families together and preventing or at least developing out of home placement. ASAP provides support to children with autism on a daily basis after the child is out of school and on Saturdays in a home setting. It also provides support to the child during summer and on holidays when the child is out of school. Residential treatment services, supported employment, parent training and advocacy services, consultation services.
Spanish Fork, UT
A home for mentally handicapped adults in Spanish Fork. Residents are fully functional and range in age from 20 to 60 years.
Division of Services for People with Disabilities (DSPD)
Government agency that provides respite care, vocational training, residential services, and information about Supplemental Security Income (SSI) for people with disabilities.
Easter Seals Northern Rocky Mountain
Respite program — ask specifically for Family Friends – three to four hours per week by volunteers. Saturday evening drop-off for children – $8.80/hour.
FAAST (Families of Autism and Asperger’s Standing Together) faastutah.weebly.com Support group for families of Autism and Asperger’s in the Ogden, Utah area and beyond. FAASTUtah@gmail.com F.A.A.S.T. is about helping families just like us to have an avenue for support and to spread the awareness for Autism and Asperger’s. Join us and help our voice get louder. Family Support Center: Autism Respite Program www.familysupportcenter.org/autismrespite.php 801-487-7778 in Sugarhouse 801-255-6881 in Midvale 2020 S Lake Street (740 East), Salt Lake City The Family Support Center offers care for children ages 0-11 years old with Autism Spectrum Disorder. All charges based on sliding fee scale. Medicaid accepted. Crisis nursery and parent support groups. Family to Family Network www.utahfamilytofamilynetwork.org 801-272-1051 Friday’s Kids Respite www.fridayskids.org Karissa 801-372-0900 or Ashley 801-361-4977 475 West 260 North Orem, UT 84057 345 North State Road 198 Salem, UT 84653 BYU Center for Service and Learning program where students can watch children with disabilities on Friday nights so their parents can get a break. This program is specifically developed to serve families who are raising children with disabilities. A nurse and a supervisor are there at all times and attend to all the children’s personal needs, such as diaper changes, etc. GIANT Steps Preschool www.wasatch.org (801) 226-5437 Utah County A preschool program for children, ages 3 and up, with autism through Wasatch Mental Health. Hidden Hollow 801-225-2145 Orem, UT Care center for males who have cognitive disabilities. Jordan Family Education Center www.jordandistrict.org/departments/jfec/ River’s Edge School (11000 S. 319 West) 801-565-7442 The Jordan Family Education Center provides support services and classes for families and students in Jordan School District. These services are provided by the District’s school psychologists and counselors. The center offers classes and short-term counseling on Tuesday, Wednesday and Thursday evenings. Classes are free, but registration is required. LINCS Parent Advocate 801-281-4425 or toll-free 877-335-4627 Consult about your rights in IEPs; will attend IEPs and advocate for you if needed. Ask for Sherilin Rowley. Lindon Care and Training 801-785-2179 Residential facility for individuals who have cognitive impairments. Lindon, UT. Medallion Manor 801-375-2710 Residential facility for adults eighteen years and older who have developmental disabilities. Provo, UT. Mesa Vista 801-225-9292 Home for individuals with cognitive disabilities between the ages of 10-92. Orem, UT. National Council on Independent Living www.ilru.org/html/publications/directory/utah.html Directory of Locations for Statewide Independent Living Council (SILC) Centers for Independent Living (CILs) Neighborhood Housing Authority 801-373-8333 ext. 108 Provides housing units for women in crisis, people with disabilities, the elderly, and families with low-incomes. Provo, UT. Outreach 801-830-1300 or 830-1200 BYU program for college-age students with disabilities. Students are involved in work programs, institute classes, and classroom situations. Programs for Children with Disabilities: Ages 3 through 5 www.schools.utah.gov/sars/preschool.htm Connie Nink, 619 Coordinator Utah State Office of Education P.O. Box 144200 Salt Lake City, UT 84114-4200 (801) 538-7948 Programs for Infants and Toddlers with Disabilities: Ages Birth through 2 www.utahbabywatch.org Susan Ord, EIP Director BabyWatch Early Intervention Program P.O. Box 144720 Salt Lake City, UT 84114-4720 (801) 584-8226; (800) 961-4226 Project TURN 801-359-8876 These organizations provide residential services, consultants, supported employment, community integration, and day treatment programs for individuals with autism. Protection and Advocacy Agency www.disabilitylawcenter.org Disability Law Center 205 North 400 West Salt Lake City, UT 84103 (801) 363-1347; (800) 662-9080 (In UT) (V/TTY) email@example.com Provo Care Center 801-373-8771 is a facility that cares for individuals who have cognitive and physical disabilities. This is not a nursing home. Visits with the residents are from 9:30 to 2 p.m. Recreation & Rehabilitation (RAH) www.rah-provo.tripod.com 801-374-8074 Works with children, teens and adults who have developmental and/or physical disabilities, by teaching them interpersonal skills and helping them be a part of the community. Respite 801-468-3000 Provides care and a break for parents and family members caring for family members with special needs. Scenic View Center 801-226-2550 Residential living center for adult males who have learning disabilities. The mission of the center is to teach the men skills to lead more independent and fulfilling lives. Provo, UT. Self-Determination Inc. 801-274-6058 Works with people 18 and up to improve and provide self-sufficiency. Social Security and Disability Resource Center www.ssdrc.com The Social Security and Disability Resource Center is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants. The site’s author is a former disability examiner for the social security administration. Southern Utah Autism Parent Group southernutahautism.blogspot.com Meetings on the third Thursday of each month from 6:30-8:00pm, at the Old Hospital on 400 E. Enter through the 24 hour entrance doors and go past the elevators and around the staff elevators. Go to the administrative board room located by the Medical Records. Southwest Educational Development Center www.sedc.k12.ut.us Cedar City 435-586-2865 Serves 6 school districts in southern Utah; provides training to teachers, conferences, etc. State CHIP Program www.utahchip.org Utah CHIP P.O. Box 16520 Salt Lake City, UT 84116 (877) 543-7669 Health care for low-income uninsured children. State Coordinator for NCLB (No Child Left Behind) www.usoe.k12.ut.us Laurie Lacy, Coordinator State Office of Education P.O. Box 144200 Salt Lake City, UT 84114-4200 (801) 538-7501 State Department of Education: Special Education www.schools.utah.gov/sars/ Glenna Gallo, Director State Office of Education P.O. Box 144200 Salt Lake City, UT 84114-4200 (801) 538-7587 State Mediation System www.schools.utah.gov Lisa Arbogast, State Compliance Officer Utah State Office of Education P.O. Box 144200 Salt Lake City, UT 84114 (801) 538-7568 State Mental Health Agency www.dsamh.utah.gov Mark I. Payne, LCSW, Director Utah Division of Substance Abuse and Mental Health Salt Lake City, UT 84103 (801) 538-8290 firstname.lastname@example.org State Mental Health Representative for Children and Youth www.hsmh.state.ut.us Kristen Reisig, Assistant Director Utah Division of Substance Abuse and Mental Health Salt Lake City, UT 84103 (801) 538-3941 email@example.com State Mental Retardation Program www.hsdspd.state.ut.us George Kelner, Director Department of Human Services Salt Lake City, UT 84103 (801) 538-4200 firstname.lastname@example.org Tophams Tiny Tots Center 801-225-0323 Home for individuals ages four to twenty-seven who have a disability. Orem, UT. Tri Connections Service 801-343-3900 Community outreach program for adults who have disabilities. Provo, UT. UCAT – Utah Center for Assistive Technology 801-887-9500 Computer and assistive technology for people with disabilities University of Utah Center for Disability Services 801-585-6148 For students attending the University of Utah University of Utah Specialty Clinic 801-585-1212 Megan Farley, PhD and Dr. Janet Lainhart Contact Jenny Jensen at 801-587-8020 or email@example.com for more information on our adolescent social skills group. Contact Jubel Morgan at firstname.lastname@example.org or 801-587-3775 for information on the men’s group, or Anna Cariello at email@example.com for information on the women’s group (Greatest Gals). The University of Utah Behavioral Health Specialty Clinic is starting up it’s adolescent social skills group for the 2011-2012 school year! Participants are ages 13 to 18 with “high-functioning” autism and Asperger’s. Groups meet on Thursday afternoons from 4:30 to 5:15 throughout the school year. Groups for men and women are also available and run year-round. US House of Representatives from Utah www.house.gov To find the contact information for your representative in the House of the U.S. Congress, visit the House’s Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY). US Senators from Utah www.senate.gov/general/contact_information/senators_cfm.cfm?State=UT Utah Autism Initiative (UAI) www.medicalhomeportal.org/diagnoses-and-conditions/autism-spectrum-disorders/resources Dr. Harper Randall firstname.lastname@example.org The Utah Autism Initiative (UAI) is a multi-agency committee made up of state agency representatives and parents of individuals with Autism Spectrum Disorder (ASD). This committee was created by Dr David Sundwall, Executive Director of the Utah Department of Health (UDOH), in spring of 1997. The UAI objectives are to foster communication amongst the agencies which provide services for those with ASD, increase awareness of the services being offered and the gaps in these services, and make recommendations to improve the quality of life and outcomes for individuals with ASD. Utah Early Intervention www.utahbabywatch.org call 1-800-826-9662, and someone will tell you how to contact your local early intervention program. Utah FEAT (Families for Effective Autism Treatment) www.utahfeat.org Provides education, support and guidance to Utah families of children on the autism spectrum, and to enhance the community of professionals and educators serving those families Utah Governor www.utah.gov/governor Honorable Gary Herbert Utah State Capitol Complex P.O. Box 142220 Salt Lake City, UT 84114-2220 (801) 538-1000 Utah Independent Living Center 801-466-5565 Assistance for people with disabilities in independent living (advocacy, support groups, recreational activities, funding source for increased independence). They offer a summer series on independent living skills for individuals age 14-22. Utah Parent Center www.utahparentcenter.org 2290 East 4500 South, Suite 110 Salt Lake City, UT 84117 (801) 272-1051 (V/TTY); (800) 468-1160 (In UT) email@example.com The Utah Parent Center has information about community services, support groups, etc. specific to autism. It also is the best resource for information, workshops, and consultation for IEP’s. Workshops – stress management, bringing your child through transition phases, etc. Parent-to parent – support when newborn or child is newly diagnosed with disability. Parent consultants – parents who have “been there”.
Utah Personnel Development Center
Autism for Educators Program
UPDC is a State of Utah agency that is funded through federal and state professional development funds/grants. Our agency conducts special education professional development activities for special educators in all of Utah’s school districts and Local Educational Agencies. Of particular interest is our introduction to autism for teachers who work with students with high functioning autism and Asperger Syndrome.
Utah Registry of Autism and Developmental Disabilities
Run by the State Health Department, URADD website and brochures provide information about ASD and links to local resources.
Utah State Developmental Center
Home for the developmentally disabled. American Fork, UT.
Utah State Hospital
Hospital for individuals suffering from mental illness or who have developmental disabilities. Provo, UT.
Vocational Rehabilitation (USOR)
Blaine Petersen, Executive Director
Utah State Office of Rehabilitation (USOR)
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7530 (V/TTY)
The mission of USOR is to assist individuals with disabilities to prepare for and obtain employment and increase their independence.
Toll Free (877) 246-9675
1595 West 500 South, Salt Lake City, Utah 84104
The Utah Department of Health in collaboration with other state agencies and organizations has worked to increase the employment and health care outcomes for people with disabilities in Utah. Work Ability Utah strives to link employers in the business community with the qualified workforce of people with disabilities. Goals include increased communication, reduction of barriers, and creation a comprehensive system of work incentives and supports for both the employer and the individual with disabilities.
Also check Upcoming Events for activities and social groups.
FROM NO WHERE TO KNOW WHERE: TRANSITION TO ADULT SERVICES
By the Utah Parent Center
What is in store for youth with disabilities after they leave school? What will happen to your child when they no longer receive the educational services or accommodations which have been mandated by federal law? These questions are important to all parents of youth with special needs, and even though disabilities may vary greatly in their severity or impact, the need to plan for the future is very important. The Utah Parent Center has a collection of fact sheets and a user-friendly parent handbook on preparing your child to transition to adult services. Learn more today!
SOCIAL SKILLS GROUPS FOR ADOLESCENTS AND ADULTS
Social Skills Groups For Youth with Autism Spectrum and Related Disorders at the Child and Ado-lescent Behavioral Health Clinics (650 Komas Dr. #208, Salt Lake City, UT 84108)
Summer Leisure Group for Youth: This is a weekly group for youth ages 8 to 13 on Wednesdays from 4:00 to 5:00 p.m. from the end of May through August. Activities include building and racing boats, games that build teamwork skills, and outings. Call or email Jubel Morgan, R.N. for more in-formation at (801) 587-3775 or firstname.lastname@example.org.
Youth Group For children ages 8 to 13, this group meets on Wednesdays each week from September through May. The group runs from 4:00 to 5:00 p.m. Activities address a wide range of social skills that group members build through games, hands-on activities and direct instruction. Call or email Jubel Morgan, R.N. for more information at (801) 587-3775 or email@example.com.
Adolescent Groups: These groups are aimed at adolescents ages 13 to 18 and run from September until May. For the 2012-2013 year, we will be starting an adolescent Girls’ Group to focus on topics of interest relevant to them. We will continue our Boys’ Group. Group sessions alternate weekly be-tween age-appropriate community outings and lessons in our offices using role playing and other hands-on activities. Weekly meetings last from 4:15 to 5:30 p.m. The 2012-2013 cost is currently un-der discussion and will be determined by early July. To obtain more information or sign up, call (801) 587-8020.
The Jordan Family Education Center is offering a second round of Confident, Successful & Independent: A Group for Young Adults with High Functioning Autism or Asperger’s Syndrome (Ages 17 thru 21) (Enrollment Limited) starting on November 1. Located in River’s Edge School, 319 West 11000 South, South Jordan Linda Jessie-Jones; Christine Winward Tuesdays 7:00 – 9:00 p.m This is a class to help teenagers and young adults ages 17-21 with High Functioning Autism or Asperger’s Syndrome to transition to independence. It will focus on self-esteem, anxiety, relationships, seeking employment, college, survival skills, and career choices. To Register, call 801-565-7442.
Transition Tool Kit developed by Autism Speaks
Transition Guide developed by Organization for Autism Research
Transition Undefined by Autism After 16
NICHCY’s Transition Summary series, Resources for Adults with Disabilities, focuses on preparing youth with disabilities to move from high school to the adult world.
Services for Adults with Disabilities
This publication helps adults with disabilities identify organizations and agencies designed to assist with their specific concerns and needs, such as employment, postsecondary education, recreation, independent living, and assistive technology. October 2010
Transition Planning: A Team Effort (TS10) PDF
This Transition Summary provides ideas and information on how students, families, school personnel, service providers, and others can work together to help students make a smooth transition. In particular, this document focuses on creative transition planning and services that use all the resources that exist in communities, not just the agencies that have traditionally been involved. 1999, Resources Updated 2002, 24 pages.
The information above is courtesy of the National Dissemination Center for Children with Disabilities.
As young adults reach age 22 most families want to celebrate. But for families with an autistic child, a 22nd birthday can be a time of great stress. That’s because some needed services may no longer be available to their child as they “age out” of the system. The one hour film “Autism: Coming of Age” explores the hopes, fears and challenges of parents raising children with autism. A documentary on UEN.
Today, professionals, families and learners with ASD are beginning to redefine the outcomes of the transition process beyond simple job placement to focus on career development and measures of personal competence and life satisfaction. To this end, this presentation will provide an overview and practical suggestions for transition planning AT ANY AGE in support of desirable and individualized employment outcomes with attention to assessment, community based training, employment development, job-related social skills, and quality of life concerns.
BECOMING LEADERS FOR TOMORROW (BLT) YOUTH LEADERSHIP TOOLKIT
By BLT, Center for Persons with Disabilities, Utah State University
The young adults on the BLT Advisory Committee told them that they should provide training on other topics, like leadership, self-advocacy, social skills, transportation, and more. So BLT made more videos (nearly 2 hours) of young adults sharing their hints and tips for other youth and young adults; parents; doctors; and other professionals. They also made a guide book to go with the videos/DVD. The guide book is for facilitators and provides some background and several discussion points and questions to use during training event. Find out how to get your copy of the Toolkit.
RESOURCES FOR COLLEGE & UNIVERSITY STUDENTS WITH DISABILITIES
Dixie State Disability Resource Center is dedicated to providing students with disabilities the opportunity to achieve their post-secondary educational goal through accessibilE services.
ASAN’s Navigating College
Run by and for Autistic people, ASAN was created to provide support and services to individuals on the autism spectrum while working to educate communities and improve public perceptions of autism. The handbook and corresponding website, Navigating College, is a first-of-its-kind resource written by autistic adults for autistic college students exploring the various aspects of the higher education experience.
Brigham Young University
University Accessibility Center
1520 Wilkinson Center
Brigham Young University
Provo, UT 84602
College of Eastern Utah
Disability Resource Center
College of Eastern Utah
451 East 400 North
Price, Utah 84501
Dixie State College
Disability Resource Center
Edith Whitehead Building
Student Services Center
Counseling and Advisement Room 201
225 South 700 East
St. George, Utah 84770
Salt Lake Community College
Disability Resource Center
4600 So. Redwood Road
Salt Lake City, Utah 84123
Accessibility Resource Center
150 E. College Avenue
Ephraim, UT 84627
Southern Utah University
Disability Support Center
University of Utah
Center for Disability Services
162 Union Bldg
200 South Central Campus Drive
Salt Lake City, Utah 84112-9107
Utah State University
Disability Resource Center
0101 Old Main Hill
Logan, UT 84322-0101
Utah Valley State College
Business Building (WB 126)
Utah Valley State College
800 West University Parkway
Orem, UT 84058
Weber State University
Services for Students with Disabilities
1129 University Circle
Ogden, UT 84408-1129
1840 South 1300 East
Salt Lake City, UT 84105