(Note: some service providers listed here provide services to young adults with autism)
Ability First: Central Utah Center for Independent Living
abilityfirstutah.org
801-373-5044
Provo, UT
Helps people with cognitive or physical disabilities live independently.
Access Utah Network
accessut.org
801-533-4636 or 1-800-333-8824
access@utah.gov
Access Utah Network is Utah’s prime source for information and referral for individuals with disabilities and their caregivers since 1990. Our operators can provide you with the information you need to find accessible housing, assistive technology and financial and social supports needed to live independently with a disability. Call us or explore our web site today to see how Access Utah Network can help you become more independent.
Alpine House
Katie: 801-373-9042
Provo, UT
Transitional home that helps adults with cognitive disabilities. The home helps them learn skills to effectively participate in the community.
Autism After 16
www.autismafter16.com
Autism After 16 is dedicated to providing information and analysis of adult autism issues, with the emphasis on analysis. Anyone can Google “autism + adults” and discover a vast array of programs, documents, and products. Our intention here is to try to help adults with ASD and their families make sense of what’s out there. Our big focus out of the gate will be Transition issues, since so many of you are struggling with Transition right now.
Autistic Self Advocacy Network (ASAN)
www.autisticadvocacy.org
www.navigatingcollege.org
info@autisticadvocacy.org
PO Box 66122
Washington, DC 20035
Run by and for Autistic people, ASAN was created to provide support and services to individuals on the autism spectrum while working to educate communities and improve public perceptions of autism. The handbook we’ve produced, Navigating College, and its corresponding website, www.navigatingcollege.org, is a first-of-its-kind resource written by autistic adults for autistic college students exploring the various aspects of the higher education experience.
Best Buddies
www.bestbuddiesutah.org
Matches volunteers with individuals from the community who have developmental disabilities. Volunteers are matched in a one-to-one friendship and serve as a mentor friend. Volunteers are asked to see their buddy twice a month and make a phone contact at least once a week for an academic year. In addition, buddy pairs will participate in chapter activities and chapter meetings six to seven times a year.
Big MAK’S (Mom’s of Autistic Kids)
utahmaks.blogspot.com
“More Support Than A 44DD”
Big MAK’s meet every 2nd Monday of each month from 6-8 p.m. at
Bouncin Off the Walls
398 West 9400 South
Sandy, UT 84070
There are also several other activities throughout the year, especially during the summer.
BYU Center for Service & Learning
centerforservice.byu.edu
centerforservice@byu.e…
801-422-8686; (801) 422-1277
Families can request help from a BYU volunteer. The ad will be posted in the BYU Center for Service & Learning Center and online.
Central Utah Enterprises
801-375-0414 ext: 14
Provo, UT
A program for individuals with disabilities to prepare them to work on their own or in a group home.
Child Care Connection
801-537-1004
Child Development Clinic, Children with Special Health Care Needs
health.utah.gov/cshcn
Utah Department of Health, University of Utah campus, 44 North Medical Drive, Salt Lake City, Utah 801-584-8510
Autism evaluations and treatment for ages 0-5 years. CSHCN provides and promotes family-centered, coordinated care and facilitates the development of community-based systems for these children and their famlies.
Children with Special Health Care Needs
health.utah.gov/cfhs
44 North Medical Drive
P.O. Box 144610
Salt Lake City, UT 84114-4610
(801) 584-8239; (800) 829-8200
Columbus Community Center
columbuscommunitycenter.org
801-262-1552
They provide occupational skill training, vocational training, residential services, and critical living skills training.
Coordinator for Transition Services
www.schools.utah.gov
Susan Loving, Specialist in Transition
Utah State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7645
Councils on Developmental Disabilities
Bryon Murray, Executive Director
Utah Developmental Disabilities Council
Salt Lake City, UT 84101
(801) 533-3965
www.gcpd.org
CTA Community Supports (Community Treatment Alternatives)
www.ctautah.org
801-268-4887
A non-profit organization that has provided services to adults and children with autism spectrum disorder since 1985. CTA developed the ASAP model to fill the gap between these two services with the primary objective of keeping families together and preventing or at least developing out of home placement. ASAP provides support to children with autism on a daily basis after the child is out of school and on Saturdays in a home setting. It also provides support to the child during summer and on holidays when the child is out of school. Residential treatment services, supported employment, parent training and advocacy services, consultation services.
Deseret Village
801-798-3937
Spanish Fork, UT
A home for mentally handicapped adults in Spanish Fork. Residents are fully functional and range in age from 20 to 60 years.
Division of Services for People with Disabilities (DSPD)
www.dspd.utah.gov
801-538-4200
Government agency that provides respite care, vocational training, residential services, and information about Supplemental Security Income (SSI) for people with disabilities.
Easter Seals Northern Rocky Mountain
esgw-nrm.easterseals.com
Respite program — ask specifically for Family Friends – three to four hours per week by volunteers. Saturday evening drop-off for children – $8.80/hour.
FAAST (Families of Autism and Asperger’s Standing Together)
faastutah.weebly.com
Support group for families of Autism and Asperger’s in the Ogden, Utah area and beyond.
FAASTUtah@gmail.com
F.A.A.S.T. is about helping families just like us to have an avenue for support and to spread the awareness for Autism and Asperger’s. Join us and help our voice get louder.
Family Support Center: Autism Respite Program
www.familysupportcenter.org/autismrespite.php
801-487-7778 in Sugarhouse
801-255-6881 in Midvale
2020 S Lake Street (740 East), Salt Lake City
The Family Support Center offers care for children ages 0-11 years old with Autism Spectrum Disorder. All charges based on sliding fee scale. Medicaid accepted. Crisis nursery and parent support groups.
Family to Family Network
www.utahfamilytofamilynetwork.org
801-272-1051
Friday’s Kids Respite
www.fridayskids.org
Karissa 801-372-0900 or Ashley 801-361-4977
475 West 260 North
Orem, UT 84057
345 North State Road 198
Salem, UT 84653
BYU Center for Service and Learning program where students can watch children with disabilities on Friday nights so their parents can get a break. This program is specifically developed to serve families who are raising children with disabilities. A nurse and a supervisor are there at all times and attend to all the children’s personal needs, such as diaper changes, etc.
GIANT Steps Preschool
www.wasatch.org
(801) 226-5437
Utah County
A preschool program for children, ages 3 and up, with autism through Wasatch Mental Health.
Hidden Hollow
801-225-2145
Orem, UT
Care center for males who have cognitive disabilities.
Jordan Family Education Center
www.jordandistrict.org/departments/jfec/
River’s Edge School (11000 S. 319 West)
801-565-7442
The Jordan Family Education Center provides support services and classes for families and students in Jordan School District. These services are provided by the District’s school psychologists and counselors. The center offers classes and short-term counseling on Tuesday, Wednesday and Thursday evenings. Classes are free, but registration is required.
LINCS Parent Advocate
801-281-4425 or toll-free 877-335-4627
Consult about your rights in IEPs; will attend IEPs and advocate for you if needed. Ask for Sherilin Rowley.
Lindon Care and Training
801-785-2179
Residential facility for individuals who have cognitive impairments. Lindon, UT.
Medallion Manor
801-375-2710
Residential facility for adults eighteen years and older who have developmental disabilities. Provo, UT.
Mesa Vista
801-225-9292
Home for individuals with cognitive disabilities between the ages of 10-92. Orem, UT.
National Council on Independent Living
www.ilru.org/html/publications/directory/utah.html
Directory of Locations for
Statewide Independent Living Council (SILC)
Centers for Independent Living (CILs)
Neighborhood Housing Authority
801-373-8333 ext. 108
Provides housing units for women in crisis, people with disabilities, the elderly, and families with low-incomes. Provo, UT.
Outreach
801-830-1300 or 830-1200
BYU program for college-age students with disabilities. Students are involved in work programs, institute classes, and classroom situations.
Programs for Children with Disabilities: Ages 3 through 5
www.schools.utah.gov/sars/preschool.htm
Connie Nink, 619 Coordinator
Utah State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7948
Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
www.utahbabywatch.org
Susan Ord, EIP Director
BabyWatch Early Intervention Program
P.O. Box 144720
Salt Lake City, UT 84114-4720
(801) 584-8226; (800) 961-4226
Project TURN
801-359-8876
These organizations provide residential services, consultants, supported employment, community integration, and day treatment programs for individuals with autism.
Protection and Advocacy Agency
www.disabilitylawcenter.org
Disability Law Center
205 North 400 West
Salt Lake City, UT 84103
(801) 363-1347; (800) 662-9080 (In UT) (V/TTY)
info@disabilitylawcenter.org
Provo Care Center
801-373-8771
is a facility that cares for individuals who have cognitive and physical disabilities. This is not a nursing home. Visits with the residents are from 9:30 to 2 p.m.
Recreation & Rehabilitation (RAH)
www.rah-provo.tripod.com
801-374-8074
Works with children, teens and adults who have developmental and/or physical disabilities, by teaching them interpersonal skills and helping them be a part of the community.
Respite
801-468-3000
Provides care and a break for parents and family members caring for family members with special needs.
Scenic View Center
801-226-2550
Residential living center for adult males who have learning disabilities. The mission of the center is to teach the men skills to lead more independent and fulfilling lives. Provo, UT.
Self-Determination Inc.
801-274-6058
Works with people 18 and up to improve and provide self-sufficiency.
Social Security and Disability Resource Center
www.ssdrc.com
The Social Security and Disability Resource Center is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants. The site’s author is a former disability examiner for the social security administration.
Southern Utah Autism Parent Group
southernutahautism.blogspot.com
Meetings on the third Thursday of each month from 6:30-8:00pm, at the Old Hospital on 400 E. Enter through the 24 hour entrance doors and go past the elevators and around the staff elevators. Go to the administrative board room located by the Medical Records.
Southwest Educational Development Center
www.sedc.k12.ut.us
Cedar City
435-586-2865
Serves 6 school districts in southern Utah; provides training to teachers, conferences, etc.
State CHIP Program
www.utahchip.org
Utah CHIP
P.O. Box 16520
Salt Lake City, UT 84116
(877) 543-7669
Health care for low-income uninsured children.
State Coordinator for NCLB (No Child Left Behind)
www.usoe.k12.ut.us
Laurie Lacy, Coordinator
State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7501
State Department of Education: Special Education
www.schools.utah.gov/sars/
Glenna Gallo, Director
State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7587
State Mediation System
www.schools.utah.gov
Lisa Arbogast, State Compliance Officer
Utah State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114
(801) 538-7568
State Mental Health Agency
www.dsamh.utah.gov
Mark I. Payne, LCSW, Director
Utah Division of Substance Abuse and Mental Health
Salt Lake City, UT 84103
(801) 538-8290
mpayne@utah.gov
State Mental Health Representative for Children and Youth
www.hsmh.state.ut.us
Kristen Reisig, Assistant Director
Utah Division of Substance Abuse and Mental Health
Salt Lake City, UT 84103
(801) 538-3941
kreisig@utah.gov
State Mental Retardation Program
www.hsdspd.state.ut.us
George Kelner, Director
Department of Human Services
Salt Lake City, UT 84103
(801) 538-4200
gkelner@utah.gov
Tophams Tiny Tots Center
801-225-0323
Home for individuals ages four to twenty-seven who have a disability. Orem, UT.
Tri Connections Service
801-343-3900
Community outreach program for adults who have disabilities. Provo, UT.
UCAT – Utah Center for Assistive Technology
801-887-9500
Computer and assistive technology for people with disabilities
University of Utah Center for Disability Services
801-585-6148
For students attending the University of Utah
University of Utah Specialty Clinic
801-585-1212
Megan Farley, PhD and Dr. Janet Lainhart
Contact Jenny Jensen at 801-587-8020 or jenny.jensen@hsc.utah.edu for more information on our adolescent social skills group.
Contact Jubel Morgan at jubel.morgan@hsc.utah.edu or 801-587-3775 for information on the men’s group,
or Anna Cariello at annahir.cariello@hsc.utah.edu for information on the women’s group (Greatest Gals).
The University of Utah Behavioral Health Specialty Clinic is starting up it’s adolescent social skills group for the 2011-2012 school year! Participants are ages 13 to 18 with “high-functioning” autism and Asperger’s. Groups meet on Thursday afternoons from 4:30 to 5:15 throughout the school year. Groups for men and women are also available and run year-round.
US House of Representatives from Utah
www.house.gov
To find the contact information for your representative in the House of the U.S. Congress, visit the House’s Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).
US Senators from Utah
www.senate.gov/general/contact_information/senators_cfm.cfm?State=UT
Utah Autism Initiative (UAI)
www.medicalhomeportal.org/diagnoses-and-conditions/autism-spectrum-disorders/resources
Dr. Harper Randall
harperrandall@utah.gov
The Utah Autism Initiative (UAI) is a multi-agency committee made up of state agency representatives and parents of individuals with Autism Spectrum Disorder (ASD). This committee was created by Dr David Sundwall, Executive Director of the Utah Department of Health (UDOH), in spring of 1997. The UAI objectives are to foster communication amongst the agencies which provide services for those with ASD, increase awareness of the services being offered and the gaps in these services, and make recommendations to improve the quality of life and outcomes for individuals with ASD.
Utah Early Intervention
www.utahbabywatch.org
call 1-800-826-9662, and someone will tell you how to contact your local early intervention program.
Utah FEAT (Families for Effective Autism Treatment)
www.utahfeat.org
Provides education, support and guidance to Utah families of children on the autism spectrum, and to enhance the community of professionals and educators serving those families
Utah Governor
www.utah.gov/governor
Honorable Gary Herbert
Utah State Capitol Complex
P.O. Box 142220
Salt Lake City, UT 84114-2220
(801) 538-1000
Utah Independent Living Center
801-466-5565
Assistance for people with disabilities in independent living (advocacy, support groups, recreational activities, funding source for increased independence). They offer a summer series on independent living skills for individuals age 14-22.
Utah Parent Center
www.utahparentcenter.org
2290 East 4500 South, Suite 110
Salt Lake City, UT 84117
(801) 272-1051 (V/TTY); (800) 468-1160 (In UT)
upcinfo@utahparentcenter.org
The Utah Parent Center has information about community services, support groups, etc. specific to autism. It also is the best resource for information, workshops, and consultation for IEP’s. Workshops – stress management, bringing your child through transition phases, etc. Parent-to parent – support when newborn or child is newly diagnosed with disability. Parent consultants – parents who have “been there”.
Utah Personnel Development Center
www.updc.org/autism-essentials
Autism for Educators Program
UPDC is a State of Utah agency that is funded through federal and state professional development funds/grants. Our agency conducts special education professional development activities for special educators in all of Utah’s school districts and Local Educational Agencies. Of particular interest is our introduction to autism for teachers who work with students with high functioning autism and Asperger Syndrome.
Utah Registry of Autism and Developmental Disabilities
www.health.utah.gov/autism
801-585-7576
URADD@utah.gov
Run by the State Health Department, URADD website and brochures provide information about ASD and links to local resources.
Utah State Developmental Center
801-763-4008
Home for the developmentally disabled. American Fork, UT.
Utah State Hospital
801-344-4254
Hospital for individuals suffering from mental illness or who have developmental disabilities. Provo, UT.
Vocational Rehabilitation (USOR)
www.usor.utah.gov/division-of-rehabilitation-services/vocational-rehabilitation
Blaine Petersen, Executive Director
Utah State Office of Rehabilitation (USOR)
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7530 (V/TTY)
The mission of USOR is to assist individuals with disabilities to prepare for and obtain employment and increase their independence.
Work Ability
www.workabilityutah.org
Toll Free (877) 246-9675
1595 West 500 South, Salt Lake City, Utah 84104
The Utah Department of Health in collaboration with other state agencies and organizations has worked to increase the employment and health care outcomes for people with disabilities in Utah. Work Ability Utah strives to link employers in the business community with the qualified workforce of people with disabilities. Goals include increased communication, reduction of barriers, and creation a comprehensive system of work incentives and supports for both the employer and the individual with disabilities.
