ALL RESOURCE LINKS
Click on a heading for more information.
Service Providers
(Diagnosis and Behavioral, Developmental, Social Skills, Sensory, Occupational and Speech Therapy)
Educational Services
Outpatient Services
ABLE-differently
www.able-differently.org
801-520-7376
Able-differently (formerly Able) is a non-profit community service to help build strength-based wellbeing resources and positive mental health for children with special health care needs and their families. Able-differently is contributed to by its community members, without costs as a non-profit public program, as an investment in healthy Utah families. Able-differently promotes a self-help model that serves school and younger age children and their families with special health care needs, who have not had success with typical forms of intervention. We support parents solving problems themselves with participation in family centered community partnerships such as with schools, medical homes and mental health systems.
Center for Persons with Disabilities at Utah State University (CPD)
www.cpdusu.org
435-797-1981
Offers diagnostic and treatment services to individuals with autism and other disabilities.
Child Development Clinic, Children with Special Health Care Needs
health.utah.gov/cshcn
Utah Department of Health, University of Utah campus, 44 North Medical Drive, Salt Lake City, Utah 801-584-8510
Autism evaluations and treatment for ages 0-5 years. CSHCN provides and promotes family-centered, coordinated care and facilitates the development of community-based systems for these children and their famlies.
Davis County Mental Health
www.co.davis.ut.us/mental_health
801-451-7799
Neurobehavior H.O.M.E. Program
healthcare.utah.edu/home
801-581-5515
The Neurobehavior HOME Program is divided into two parts: the Neurobehavior Clinic and the HOME Program. Neurobehavior Clinic. The Neurobehavior Clinic is a mental health only program for people with developmental disabilities. In this program we treat mental health and behavioral challenges while the person’s own primary care doctor provides medical care. Services are paid for through private insurance, Medicaid, or self pay. This program is currently closed to new patients. HOME Program. The HOME Program is a coordinated care program for people with developmental disabilities where we provide both medical and mental health care. People enrolled in this program receive comprehensive care services. All enrollees have their Medicaid card changed to HOME, and services are covered under Medicaid. Enrollees must meet the following eligibility criteria: Receive Utah Medicaid; Have a developmental disability; Have mental health or behavioral challenges; and Desire to receive both primary medical care and mental health care from our program.
Neurology, Learning, and Behavior Center
Sam Goldstein, Ph.D.
801-532-1484
Offers diagnostic evaluations and social skills training for higher-functioning individuals with autism spectrum disorders.
Primary Children’s Medical Center , Department of Neurobehavioral Clinic
801-581-5515
Rehab Bountiful (801) 292-8665
Rehab Ogden (801) 387-2080
Rehab Sandy (801) 571-3081
Rehab Taylorsville (801) 840-4360
Rehab Department offers speech-language, sensory integration, occupational and physical therapy. Neurobehavioral clinic provides diagnostic evaluations, neuropsychological assessment, home programs, behavior management, and medication consultation.
Scottish Rite Children’s Learning Center
www.srchildrenslearningcenter.org
Salt Lake: 801-486-0579
Ogden 801-627-8878
The Children’s Center
www.tccslc.org
Salt Lake City: 801-582-5534
Kearns 801-966-4251
The Children’s Center provides comprehensive mental health services for children ages birth to eight. We serve children with emotional and behavioral disorders. Services include: mental health evaluations and assessments, child and family therapy, social skills groups for children with ASD ages 4-10, PLAY Project (home based DIR/Floortime), evidence-based trauma treatments, therapeutic preschool, parent-toddler groups, and medication management. For more information on how we can help, please visit www.tccslc.org. Services are provided on a sliding scale fee or with insurance.
University of Utah Autism Clinic
Janet Lainhart, M.D., Judith Miller, Ph.D., Lori Krasny, M.S.
801-585-1212
Outpatient services for individuals with autism spectrum disorders across the lifespan, including diagnostic evaluations, social skills groups, psychoeducational assessments, school consultations, medication management, PECS, and speech-language therapy.
University of Utah Psychoeducational Clinic
1901 East South Campus Drive, Room 1130, Salt Lake City, Utah (801-581-6068)
Advanced graduate students and faculty in the Department of Educational Psychology provide a range of services to children, adolescent, including those with autism spectrum disorders, and their families. Services include psychological and neuropsychological assessment and counseling.
Valley Mental Health
www.vmh.com
(888) 949-4VMH (4864)
We serve adults, children, and seniors in Salt Lake, Tooele, and Summit County.
A behavioral healthcare provider specializing in mental health, substance abuse and prevention services.
Wasatch Mental Health
www.wasatch.org
801-373-4760
Recreation
Respite/Residential/Vocational Services
Support
Utah State Agencies
ABLE-differently
www.able-differently.org
801-520-7376
Able-differently (formerly Able) is a non-profit community service to help build strength-based wellbeing resources and positive mental health for children with special health care needs and their families. Able-differently is contributed to by its community members, without costs as a non-profit public program, as an investment in healthy Utah families. Able-differently promotes a self-help model that serves school and younger age children and their families with special health care needs, who have not had success with typical forms of intervention. We support parents solving problems themselves with participation in family centered community partnerships such as with schools, medical homes and mental health systems.
Child Development Clinic, Children with Special Health Care Needs
health.utah.gov/cshcn
Utah Department of Health, University of Utah campus, 44 North Medical Drive, Salt Lake City, Utah 801-584-8510
Autism evaluations and treatment for ages 0-5 years. CSHCN provides and promotes family-centered, coordinated care and facilitates the development of community-based systems for these children and their famlies.
Children with Special Health Care Needs
health.utah.gov/cfhs
44 North Medical Drive
P.O. Box 144610
Salt Lake City, UT 84114-4610
(801) 584-8239; (800) 829-8200
Coordinator for Transition Services
www.schools.utah.gov
Susan Loving, Specialist in Transition
Utah State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7645
Councils on Developmental Disabilities
Bryon Murray, Executive Director
Utah Developmental Disabilities Council
Salt Lake City, UT 84101
(801) 533-3965
www.gcpd.org
GIANT Steps Preschool
www.wasatch.org
(801) 226-5437
Utah County
A preschool program for children, ages 3 and up, with autism through Wasatch Mental Health.
Programs for Children with Disabilities: Ages 3 through 5
www.schools.utah.gov/sars/preschool.htm
Connie Nink, 619 Coordinator
Utah State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7948
Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
www.utahbabywatch.org
Susan Ord, EIP Director
BabyWatch Early Intervention Program
P.O. Box 144720
Salt Lake City, UT 84114-4720
(801) 584-8226; (800) 961-4226
Protection and Advocacy Agency
www.disabilitylawcenter.org
Disability Law Center
205 North 400 West
Salt Lake City, UT 84103
(801) 363-1347; (800) 662-9080 (In UT) (V/TTY)
info@disabilitylawcenter.org
Southwest Educational Development Center
www.sedc.k12.ut.us
Cedar City
435-586-2865
Serves 6 school districts in southern Utah; provides training to teachers, conferences, etc.
State CHIP Program
www.utahchip.org
Utah CHIP
P.O. Box 16520
Salt Lake City, UT 84116
(877) 543-7669
Health care for low-income uninsured children.
State Coordinator for NCLB (No Child Left Behind)
www.usoe.k12.ut.us
Laurie Lacy, Coordinator
State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7501
State Department of Education: Special Education
www.schools.utah.gov/sars/
Glenna Gallo, Director
State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7587
State Mediation System
www.schools.utah.gov
Lisa Arbogast, State Compliance Officer
Utah State Office of Education
P.O. Box 144200
Salt Lake City, UT 84114
(801) 538-7568
State Mental Health Agency
www.dsamh.utah.gov
Mark I. Payne, LCSW, Director
Utah Division of Substance Abuse and Mental Health
Salt Lake City, UT 84103
(801) 538-8290
mpayne@utah.gov
State Mental Health Representative for Children and Youth
www.hsmh.state.ut.us
Kristen Reisig, Assistant Director
Utah Division of Substance Abuse and Mental Health
Salt Lake City, UT 84103
(801) 538-3941
kreisig@utah.gov
State Mental Retardation Program
www.hsdspd.state.ut.us
George Kelner, Director
Department of Human Services
Salt Lake City, UT 84103
(801) 538-4200
gkelner@utah.gov
State Vocational Rehabilitation Agency
www.usor.utah.gov
Blaine Petersen, Executive Director
Utah State Office of Rehabilitation
P.O. Box 144200
Salt Lake City, UT 84114-4200
(801) 538-7530 (V/TTY)
The mission of USOR is to assist individuals with disabilities to prepare for and obtain employment and increase their independence
US House of Representatives from Utah
www.house.gov
To find the contact information for your representative in the House of the U.S. Congress, visit the House’s Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).
US Senators from Utah
www.senate.gov/general/contact_information/senators_cfm.cfm?State=UT
Utah Autism Initiative (UAI)
www.medicalhomeportal.org/diagnoses-and-conditions/autism-spectrum-disorders/resources
Dr. Harper Randall
harperrandall@utah.gov
The Utah Autism Initiative (UAI) is a multi-agency committee made up of state agency representatives and parents of individuals with Autism Spectrum Disorder (ASD). This committee was created by Dr David Sundwall, Executive Director of the Utah Department of Health (UDOH), in spring of 1997. The UAI objectives are to foster communication amongst the agencies which provide services for those with ASD, increase awareness of the services being offered and the gaps in these services, and make recommendations to improve the quality of life and outcomes for individuals with ASD.
Utah Early Intervention
www.utahbabywatch.org
call 1-800-826-9662, and someone will tell you how to contact your local early intervention program.
Utah Governor
www.utah.gov/governor
Honorable Gary Herbert
Utah State Capitol Complex
P.O. Box 142220
Salt Lake City, UT 84114-2220
(801) 538-1000
Utah Personnel Development Center
www.updc.org/autism-essentials
Autism for Educators Program
UPDC is a State of Utah agency that is funded through federal and state professional development funds/grants. Our agency conducts special education professional development activities for special educators in all of Utah’s school districts and Local Educational Agencies. Of particular interest is our introduction to autism for teachers who work with students with high functioning autism and Asperger Syndrome.
Utah Registry of Autism and Developmental Disabilities
www.health.utah.gov/autism
801-585-7576
URADD@utah.gov
Run by the State Health Department, URADD website and brochures provide information about ASD and links to local resources.
Utah Disability/Mental Health Organizations
Access Utah Network
accessut.org
801-533-4636 or 1-800-333-8824
access@utah.gov
Access Utah Network is Utah’s prime source for information and referral for individuals with disabilities and their caregivers since 1990. Our operators can provide you with the information you need to find accessible housing, assistive technology and financial and social supports needed to live independently with a disability. Call us or explore our web site today to see how Access Utah Network can help you become more independent.
Allies with Families
www.allieswithfamilies.org
Lori Cerar, Executive Director
505 East 200 South, #25
Salt Lake City, UT 84102
(801) 433-2595; (877) 477-0764
allies@allieswithfamilies.org
Canines with a Cause
www.canineswithacause.com
The mission of “Canines With a Cause” is to rescue shelter dogs and train them to work with people who need a companion, therapy or service dog. Although we know all dogs are wonderful, some of them just don’t have what it takes nor do they want to work, they prefer being with person or family and just can’t leave kitties, other dogs or distractions alone. They are all special in our eyes and have basic training.
Disability Law Center
www.disabilitylawcenter.org
801-363-1347
We are designated as the Protection and Advocacy agency for the state of Utah to protect the rights of people with disabilities in Utah. Our mission is to enforce and strengthen laws that protect the opportunities, choices and legal rights of people with disabilities in Utah. Our Short Term Assistance Team can help you figure out if you have a legal issue and what to do about it.
Financial Planning for Families with Special Needs Children
www.lindsey-eggett.com
Receive a free Life Guide for Special Needs Planning. This Guide will give you information on First Steps, Future Needs, Legal Planning, Wills and Guardians, Letter of Intent, Special Needs Trust, Medical Planning, Financial Planning, Education Planning, Help and Advice.
Jordan Family Education Center
www.jordandistrict.org/departments/jfec/
River’s Edge School (11000 S. 319 West)
801-565-7442
The Jordan Family Education Center provides support services and classes for families and students in Jordan School District. These services are provided by the District’s school psychologists and counselors. The center offers classes and short-term counseling on Tuesday, Wednesday and Thursday evenings. Classes are free, but registration is required.
Mental Health Association in Utah
1800 South West Temple, Suite 501
Salt Lake City, UT 84115
(801) 596-3705
NAMI-Utah
www.namiut.org
Sherri Wittwer, Executive Director
450 South 900 East
Salt Lake City, UT 84102
(801) 323-9900
sherriwittwer@msn.com
University Centers for Excellence in Developmental Disabilities
www.cpd.usu.edu
Dr. Sarah Rule, Director
Utah State University
6800 Old Main Hill
Logan, UT 84322-6800
(435) 797-1987
Utah 2-1-1
www.informationandreferral.org
211
Locating available and appropriate resources can be difficult and frustrating and Utah’s 2-1-1 Information and Referral strives to ease the process.
Utah Autism Foundation
www.utahautismfoundation.org
Formed to identify and support research on both a local and national level into the cause, prevention, and potential treatment of autism.
Utah Autism Initiative (UAI)
www.medicalhomeportal.org/diagnoses-and-conditions/autism-spectrum-disorders/resources
Dr. Harper Randall
harperrandall@utah.gov
The Utah Autism Initiative (UAI) is a multi-agency committee made up of state agency representatives and parents of individuals with Autism Spectrum Disorder (ASD). This committee was created by Dr David Sundwall, Executive Director of the Utah Department of Health (UDOH), in spring of 1997. The UAI objectives are to foster communication amongst the agencies which provide services for those with ASD, increase awareness of the services being offered and the gaps in these services, and make recommendations to improve the quality of life and outcomes for individuals with ASD.
Utah Parent Center
www.utahparentcenter.org
2290 East 4500 South, Suite 110
Salt Lake City, UT 84117
(801) 272-1051 (V/TTY); (800) 468-1160 (In UT)
upcinfo@utahparentcenter.org
The Utah Parent Center has information about community services, support groups, etc. specific to autism. It also is the best resource for information, workshops, and consultation for IEP’s. Workshops – stress management, bringing your child through transition phases, etc. Parent-to parent – support when newborn or child is newly diagnosed with disability. Parent consultants – parents who have “been there”.
Utah Speech-Language-Hearing Association
www.ushaonline.net
Bryan Layton, President
Salt Lake City, UT 84102
(801) 595-1700
Utah State Family Council
usdc.utah.gov/about_family_council.html
Each county or region in Utah has a Family Council that can provide information about how to access community assistance and services. A MUST for any family with a child with special needs!
National Organizations
Autism Consortium
www.autismconsortium.org/empowering-families/parent-information-packet.html
Excellent information on autism available in several languages, including Spanish, Portuguese, Chinese and Vietnamese
Autism Research Institute
www.autism.com
San Diego, CA
619-281-7165
National organization devoted to conducting research, and to disseminating the results of research, on the causes of autism and on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood. We provide information based on research to parents and professionals throughout the world.
Autism Society of America
www.autism-society.org
800-3AUTISM
National organization providing information, conferences, and publications on a wide variety of topics.
Autism Society of North Carolina
www.autismsociety-nc.org
919-743-0204
Maintains a bookstore with hundreds of titles on autism and related disorders.
Autism Speaks
www.autismspeaks.org
212-252-8584
We are dedicated to funding research into the causes, prevention, treatments, and cure for autism; to raise public awareness about autism and its effects on individuals, families, and society; and to bring hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals. We aim to bring the autism community together to urge the government and private sector to listen to our concerns and take action.
Government Resource for Americans with Disabilities
www.disabilityinfo.gov
Connecting the Disability Community to Information & Opportunities
IAN, Interactive Autism Network
www.ianproject.org
IAN, Interactive Autism Network, is an innovative online project designed to accelerate the pace of autism research by linking researchers and families. Anyone impacted by an Autism Spectrum Disorder (ASD) can become part of IAN’s online community, www.iancommunity.org, to stay informed about autism research, provide feedback, and make their voices heard.
National Dissemination Center for Children with Disabilities
www.nichcy.org
800-695-0285
They serve as a central resource of information on disabilities in infants, toddlers, children and youth. They also have information on IDEA and No Child Left Behind laws. In addition, they have compiled research-based information on effective educational practices.
NORD
800-459-7599
Helps provide low-cost medication to those who are unable to afford them.
Parent to Parent Program
800-651-1151
National program that links parents of newly diagnosed children with experienced parents for support, advice and guidance.
Special Learning
www.special-learning.com
Special Learning exists to offer every parent with a child on the spectrum a genuine chance to help their son or daughter attain an abundant and fulfilling life using Applied Behavior Analysis (ABA) Therapy. By providing the global autism community with best-practice tools, education and training designed to empower parents, teachers and providers, we help individuals with autism move up the skills spectrum intuitively, successfully and affordably
SSI – Supplemental Security Income and SSDI – Social Security Disability Insurance
www.socialsecurity-disability.org/content/social-security-programs
800-772-1213
Stipend for children and adults with disabilities. Must be disability and income eligible.
US Autism & Asperger Association Association
www.usautism.org
USAAA is a leading nonprofit organization for education, support, and solutions. Our goal is to “Provide the Opportunity” for individuals with autism spectrum disorders to achieve their fullest potential.
WIC (801-942-5437 [WIC-KIDS] or 1-800-662-3638)
Nutrition services for under five years of age
Technology and Apps – NEW!
FEATURED
The Utah Parent Center is a non-profit organization dedicated to helping parents of children and young adults with all disabilities. The SaharaCares Foundation is a community leader that focuses on programs and projects that involve children at risk. These can be children who are disadvantaged, seriously ill and/or from a financially challenged family who otherwise could not participate in typical childhood activities. The Carson Smith Scholarship is a state-funded program that provides private school scholarships to students with disabilities K-12. Also see Parents for Choice in Education. Big MAKs is a group of “Mothers with Autistic Kids” who rally around each other for encouragement and support. From Bissell, who “means clean”, comes the Little Green Machine. This tool is one that you will want in your arsenal as you raise a family member with a disability. It sprays, suction cleans and dries in one easy step and cleans in those hard to reach areas. It also quickly cleans spots and stains.
